Well now hey now, post 7! I’m on a roll today! I have a couple more post ideas before I finally get to the whole transplant thing, and the road that lead there. But in the mean time, I want to share a list and some other things that have helped me with my journey.
This list was written months ago, but it still applies. Perhaps I will make an edited one when this is all over, but for now, this one will suffice. Top 10 list of “lessons I can currently think of that I’ve learned throughout this whole AML deal.”
1. You are not your hair. I used to think I was, but when I shaved my head I found I was much more confident than I had been before because I had nothing to hide behind anymore. I miss my long hair, but it will be back.
2. You are not your sickness, and it should never be called “my” this or that. It doesn’t belong to you, nor do you belong to it. You’ll kick it’s ass.
3. Hot showers will become even more precious and should be enjoyed to the utmost extent. (Even if that means using all the hot water… Sorry family, and Tim)
4. (This one’s still in the works…) Don’t be afraid to speak your mind, especially when your health is concerned.
5. Even when it’s hard, smiling is good. No one expects you to be happy 24/7, but any attempt to lift your spirits is good.
6. People are incredibly kind and selfless. For all the evil and negativity in the world, I believe goodness reigns supreme.
7. Eat what you can, when you can. There will be pressure, but take it all in stride. Eventually you’ll get your appetite back.
8. Foot rubs/back rubs will feel even better than before, and should rarely be refused (hey, you’ll be good as new soon enough, may as well enjoy it while it lasts… 🙂 )
9. Good company makes a huge difference. Even if you’re asleep while they’re present.
10. Be patient. Some days it will be the most difficult thing imaginable, but you’ll get through it, and when you do, you’ll be stronger and wiser than you were before.
Next up is a poem I wrote (whilst intoxicated at a brewery), that I stand behind 100%, even as a sober person.
Cherry Pie, Out My Anus
No More Pubes
Next, is the quote (I wish I knew exactly who it was by, but I can’t seem to find a consistent source. So just know it was not at all written by me.) that helped to get me through the days in the hospital, and the tough days at home.
“Fate whispers to the Warrior,
‘you cannot withstand the storm’
And the Warrior whispers back,
‘I Am The Storm.”
And now, is the genius idea my mom came up with pretty early on during this adventure. If you’ve ever head of Drunk History (on Comedy Central), we decided that when I’m better we will make a spoof called “Drunk Leukemia” where I will basically rant and say whatever comes to mind regard specific questions, moments, or whatever that happened during my experience with AML. Good shit, I’m pretty pumped for this to happen!!